Public consciousness of the increasing number of people who feel secluded and alone is growing, but for those with multiple criteria sclerosis, perhaps it’s not increasing rapidly enough. New MS society research untied to concurrent with the International Day of Persons with incapacity, claims that three in five people with MS feel lonely because of their circumstances 12 times, the number in the general population. A total of 58% say they secluded for MS and more than 40% they have felt both.
MS Society director of services and support said: “Anybody can be lonely, but we know from our research that loneliness is an issue which disproportionately affects people living with MS. The MS Society offers a whole host of support, including a free helpline, information and grants. Our local groups are based all around the UK and provide friendship, social events and support to those affected by the condition. To think 60% of people with MS are lonely is shocking and we hope to encourage people to get in touch with us and join the fantastic community that’s out there.
Dee Dee Morgan is one of more than 100,000 people in the United States with MS. A hundred more cases are diagnosed every week. Living lonely in London along with mobility issues, she knows all too well how the illness can reach its toll mentally, as well as physically, and how freely it is to fail to gain the touch of society.
She added, “ MS can be very lonely. Before MS, a lot of my social life was linked to work, so when I had to stop working that was a big loss. I got more free time but a lot of that was spent stuck in the house. My family aren’t round the corner, and they’ve all got busy lives so it’s not easy to drop everything. I have a carer who comes regularly and a few close friends but don’t often want to go out, so unless people come to visit me I spend a lot of time by myself.”